
this was the exact word that we were dreading to hear after Sam's test for SMA. how could a word that was oftentimes perceived as good, be the exact opposite for us. and as we have feared, Sam turned out to be positive of SMA. i really don't know how to react with this diagnosis knowing that this will be a big challenge for the family. but i guess all things happen for a reason, we may not know what God's purpose for this is at the moment, but i hope that he can at least give us a clue so that we will not be wondering for a long time. right now we will just concentrate on preventing the progression of the disease by looking after Sam's health. we are seeing a lot of improvement from the regular PT & OT sessions that he is having as well as mommy Hannah's daily exercises, which helps Sam's muscles to develop while the disease is just on its onset. but in preparation for the worse, we currently looking for the medical tools necessary to aid sam with this conditon. if some of you would know of anyone who could sell us a ventillator at a very cheap price, we would appreciate it very much. for those who are continuously praying for Sam, we thank you very much.
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